Contenido principal del artículo
Objective: To describe care competence and its association with overburden of caregivers of patients with chronic diseases. Method: Quantitative, descriptive, cross-sectional study, with a convenience sample. Three instruments were used for data collection: the GCPC-UN instrument for caregiver-patient characterization, the Homecare Skills Questionnaire (CUIDAR, as per its name in Spanish), and the Zarit Burden Interview. Participants in this study were 102 caregivers of people hospitalized in a health institution who met the inclusion criteria. Results: Caregivers were mainly women, had a low level of education, high burden (56.8%), and high level of care competence (68.6%). A statistically significant correlation was found between overburden and overall scores on the CUIDAR instrument, as well as with the following categories: knowledge, uniqueness and anticipation. Conclusion: Homecare competence is associated with overburden of caregivers of people with CNCDs. Therefore, nursing teams have to identify the needs of caregivers and take action so as to contribute to seamless transitions to patients’ homes.
Detalles del artículo
World Health Organization. World Health Statistics, 2019: Monitoring Health for the sustainable develoment goals. Geneva: Geneva: World Health Organizatio; 2019. 132 p.
World Health Organization. World Health Statistics, 2018: Monitoring Health for the sustainable develoment goals. Geneve; 2018. p. 100.
Zuccala E, Horton R. Reframing the NCD agenda: a matter of justice and equity. Lancet. septiembre de 2020. [cited 2022 Mar 02]; 6736(20):31910–3. https://doi.org/10.1016/S0140-6736(20)31910-3
Pedreira LC, Maria Cabral Ferreira A, Tadeu Reis Silva G, Maria de Oliveira Silva R, Marques Freitas C. Older Brazilian caregivers and their lived experiences of caring—A hermeneutic phenomenological study. J Clin Nurs. 2018. [cited 2021 Mar 15]; 27(17–18):3314–23. http://dx.doi.org/ 10.1111/jocn.14207.
Aksoydan E, Aytar A, Blazeviciene A, van Bruchem - Visser RL, Vaskelyte A, Mattace-Raso F, et al. Is training for informal caregivers and their older persons helpful? A systematic review. Arch Gerontol Geriatr. 2019. [cited 2021 Mar 05]; 83(August 2018):66–74. https://doi.org/10.1016/j.archger.2019.02.006
Sambasivam R, Liu J, Vaingankar JA, Ong HL, Tan ME, Fauziana R, et al. The hidden patient: chronic physical morbidity, psychological distress, and quality of life in caregivers of older adults. Psychogeriatrics. 2018. [cited 2021 Abr 15]; 19(1):65–72. https://doi.org/10.1111/psyg.12365
Lima ICS, Lima SBA. Experiencing feelings and weaknesses of care in schizophrenia: family caregivers vision. Rev Fun Care Online. 2017. [cited 2022 Dbr 3]; 9(4): 1081-1086. http://dx.doi.org/10.9789/2175-5361.2017.v9i4.1081-1086
Sanches MR, Pipek LZ, Mesquita GHA de, et al. The impact of stressors and overload on informal caregivers of patients with cirrhosis: The first use of the Burden Scale for Family Caregivers in Brazil. Journal of Health Psychology. 2022. [cited 2022 Dbr 3]; 27(2):408-421. http://dx.doi.org/10.1177/1359105320953464
Carrillo GM, Herrera BS, Arias Rojas EM. Validation of an instrument to assess the homecare competency of the family caregiver of a person with chronic disease. Investig y Educ en Enferm. 2015. [cited 2021 Abr 15]; 33(3):449–55. https://doi.org/10.17533/udea.iee.v33n3a08.
Liu HY, Yang CT, Wang YN, Hsu WC, Huang TH, Lin YE, et al. Balancing competing needs mediates the association of caregiving demand with caregiver role strain and depressive symptoms of dementia caregivers: A cross-sectional study. J Adv Nurs. 2017. [cited 2021 Abr 15]; 73(12):2962–72. https://doi.org/10.1111/jan.13379.
Given B, Sherwood PR, Given CW. What knowledge and skills do caregivers need? J Soc Work Educ. 2008; [cited 2021 Mar 15]; 44(sup3):115–23. https://doi.org/10.1097/01.NAJ.0000336410.30001.cb.
Tulek Z, Baykal D, Erturk S, Bilgic B, Hanagasi H, Gurvit IH. Caregiver Burden, Quality of Life and Related Factors in Family Caregivers of Dementia Patients in Turkey. Issues Ment Health Nurs. 2020. [cited 2021 May 17]; 41:8, 741-749. https://doi.org/ 10.1080/01612840.2019.1705945.
Andrade G, Rangu S, Provini L, Putterman E, Gauthier A, Castelo-Soccio L. Childhood vitiligo impacts emotional health of parents: a prospective, cross-sectional study of quality of life for primary caregivers. J Patient-Reported Outcomes. 2020. [cited 2021 Ago 04]; 4(1):1–5. https://doi.org/10.1186/s41687-020-0186-2.
Ramírez CA, Salazar Y, Perdomo AY. Quality of life of caregivers of persons with neurological disorder sequels. Rev Cient la Soc Esp Enferm Neurol. 2017. [cited 2021 Abr 08]; 45. https://doi.org/10.1016/j.sedeng.2016.12.001.
Al Qadire M, Aloush S, Alkhalaileh M, Qandeel H, Al-Sabbah A. Burden Among Parents of Children With Cancer in Jordan: Prevalence and Predictors. Cancer Nurs. 2020. [cited 2021 Abr 08]; 43(5):396–401. https://doi.org/10.1097/NCC.0000000000000724.
Carreño S, Arias M. Competence to care in the home and burden in the caregiver of the child with cancer. Gac Mex Oncol. 2016. [cited 2021 Mar 16]; 15(6):336–43. https://doi.org/10.1016/j.gamo.2016.09.009.
Carrillo GM, Sanchez B, Vargas E. Development and psychometric tests of the "cuidar" instrument - short version for the assessment of the competence for home care. Rev la Univ Ind Santander Salud. 2016. [cited 2021 Ago 08]; 48(2):222–31. http://dx.doi.org/10.18273/revsal.v48n2-2016007
Chaparro L, Sánchez B, Carrillo G. Survey characterization care dyad family caregiver – a person with a chronic disease. Rev Cienc y Cuid. 2014. [cited 2021 Abr 08]; 11(2):31–45. https://doi.org/10.22463/17949831.196.
Barreto RV, Campos MS, Carrillo GM, Coral R, Chaparro L, Durán M, et al. Entrevista de Percepção de Carga do Cuidado de Zarit: Provas psicométricas para a Colômbia. Aquichan. 2015. [cited 2021 Mar 16]; 15(3):368–80. http://dx.doi.org/10.5294/aqui.2015.15.3.5
Ramírez CA, Chacón E, Perdomo AY. Dealing the toughness of Chronic disease, challenges of the dyad: caregiver/person cared for. Cult los Cuid Rev Enfermería y Humanidades 2018. [cited 2021 Abr 07]; 22(52):46–57. http://dx.doi.org/10.14198/cuid.2018.52.04.
Torres B, Agudelo MC, Pulgarin M B-FD. Factors associated with overloading in the primary caregiver. Medellin, 2017. 2018. [cited 2021 Mar 15]; 20(3):261–9. https://doi.org/10.22267/rus.182003.130.
Barrera L, Campos MS, Gallardo K, Coral RC H-BA. Social support perceived in people with chronic disease and their family caregivers in five macro regions of Colombia. Rev Univ salud. 2016. [cited 2021 Sep 10]; 18(1):102–12. http://dx.doi.org/10.22267/rus.161801.23.
Sánchez LM, Carrillo M. Competency for homecare of that dyad person with cancer in chemotherapy and his caregiver family. Psicooncologia. 2017. [cited 2020 Sep 10]; 14(1):137–48. https://doi.org/10.5209/PSIC.55817.
Cantillo CP, Ramírez CA, Perdomo AY. Caring ability in family caregivers of people with chronic disease and perceived overload. Cienc enferm. 2018. [cited 2021 Sep 13]; 24(16):1–12. http://dx.doi.org/10.4067/s0717-95532018000100216.
Kazemi A, Azimian J, Mafi M, Allen KA, Motalebi SA. Caregiver burden and coping strategies in caregivers of older patients with stroke. BMC Psychol. 2021. [cited 2022 Dbr 3]; 9, 51. https://doi.org/10.1186/s40359-021-00556-z
Bagnasco A, Rosa F, Dasso N, Aleo G, Catania G, Zanini M, Rocco G, Turci C, Ghirotto L, Hayter M & Sasso, L. Caring for patients at home after acute exacerbation of chronic obstructive pulmonary disease: A phenomenological study of family caregivers’ experiences. Journal of Clinical Nursing. 2021. [cited 2022 Dbr 3]; 30(15-16):2246-2257 http://dx.doi.org/10.1111/jocn.15613.
Gresswell I, Lally L, Adamis D, McCarthy GM. Widening the net: exploring social determinants of burden of informal carers. Ir J Psychol Med. 2018 Mar. [cited 2022 Dbr 3]; 35(1):43-51. http://dx.doi.org/10.1017/ipm.2017.36.
Batthyány K, Genta N, Perrotta V. The contribution of family and women to unpaid health care in Uruguay. Rev Estud Fem. 2017. [cited 2021 Oct 05];25(1):187–213. https://doi.org/10.1590/1806-9584.2017v25n1p187.
Vega OM, González DS. Social Support Perceived and Competence for Care in the Home, Ocaña, Colombia. Nova. 2019. [cited 2021 Oct 07]; 17(32):95–108. https://doi.org/10.22490/24629448.3638.
Lee VYW, Seah WY, Kang AWC, Khoo EYH, Mooppil N, Griva K. Managing multiple chronic conditions in Singapore – Exploring the perspectives and experiences of family caregivers of patients with diabetes and end stage renal disease on haemodialysis. Psychol Heal. 2016. [cited 2021 Oct 10]; 31(10):1220–36. https://doi.org/10.1080/08870446.2016.1203921.
Rico M, Quesada V, Polentinos E, Sánchez R, Rayo MÁ, Del Cura I; CuidaCare Group. Health-related quality of life in caregivers of community-dwelling individuals with disabilities or chronic conditions. A gender-differentiated analysis in a cross-sectional study. BMC Nurs. 2022. [cited 2022 Dbr 4]; Mar 29;21(1):69. https://doi.org/10.1186/s12912-022-00845-x.
Ahn S, Esquivel JH, Davis EM, Logan JG, Chung ML. Cardiovascular Disease Incidence and Risk in Family Caregivers of Adults With Chronic Conditions: A Systematic Review. J Cardiovasc Nurs. 2022 May-Jun 01. [cited 2022 Dbr 4]; 37(3):E47-E60. https://doi.org/10.1097/JCN.0000000000000816.
Javanmardifard S, Shirazi F, Jamalnia S, Sadeghi E. Relationship Between Caregiver Burden and Cognitive Impairment in Adult Patients with Type 2 Diabetes. J Holist Nurs Midwifery 2022. [cited 2022 Dbr 4]; 32(3):203-209. https://doi.org/10.32598/jhnm.32.3.2207
Sarabia C, Taltavull J. M, Miguélez A, Fernández A, Ortego C & Fernández R. Experiences of caregiving and quality of healthcare among caregivers of patients with complex chronic processes: A qualitative study. Applied Nursing Research. 2020. [cited 2022 Dbr 4]; 56, 151344. https://doi.org/doi:10.1016/j.apnr.2020.151344
Liu J, Liu Q, Huang Y, Wang W, He G, Zeng Y. Effects of personal characteristics, disease uncertainty and knowledge on family caregivers’ preparedness of stroke survivors: a cross-sectional study. Nurs Heal Sci. 2020, [cited 2022 ene 05]; 7(e013210). http://dx.doi.org/10.1111/nhs.12743.
Li X, Xia X, Wang P, Zhang S, Liu M, Wang L. Needs and rights awareness of stroke survivors and caregivers: A cross-sectional, single-centre questionnaire survey. BMJ Open. 2017. [cited 2021 Oct 12]; 7(10). http://dx.doi.org/10.1136/bmjopen-2016-013210.
Chaparro L. How a "Special Caring Bond is Form Between Chronically ill Patient Fam Caregiver. 2011. [cited 2021 May 05]; 11(1):7–22. http://dx.doi.org/10.5294/aqui.2011.11.1.1.