Aprendendo a viver com um órgão transplantado
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Introdução: A insuficiência renal crônica é uma doença silenciosa; quando os sintomas aparecem, a pessoa precisa iniciar a terapia de diálise ou começar o processo para o transplante renal. Este transplante gera melhora na qualidade de vida destas pessoas. Objetivo: Analisar de maneira compreensiva a experiência vivida pelas pessoas com insuficiência renal crônica que tem sido transplantadas e os significados para a sua saúde que a família próxima percebe. Método: Estudo qualitativo, fenomenológico-hermenêutico empregando o referente teórico de Van Manen. Estudaram-se 11 pessoas doentes e 5 cuidadores moradores da cidade de Neiva. A informação coletou-se empregando a entrevista a profundidade. Resultados: Na análise surgiu o tema “a esperança de uma segunda oportunidade, aprender a viver com um órgão transplantado”, construído pelos subtemas (identificados nos pacientes e cuidadores): a doação como um presente de Deus, a ligação anunciando o transplante, reconhecer o finito do órgão e voltar a nascer com o transplante. Conclusões: A doação é um presente que é esperado pacientemente, com a finalidade de encerrar um tratamento que gera medo e desesperação. Esta alternativa de tratamento leva aos pacientes a terem a sensação de renascença e de recuperação da vida que foi perdida pela diálise, embora reconheçam que é finito.
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Gamarra G. Epidemiologí a de la insuficiencia renal cró nica. Acta Medica Colomb. 2013;38(3):116–7. DOI: https://doi.org/10.36104/amc.2013.301
Schaepe C, Bergjan M. Educational interventions in peritoneal dialysis: A narrative review of the literature. Int J Nurs Stud. 2015;52(4):882–98. doi: 10.1016/j.ijnurstu.2014.12.009. Epub 2015 Jan 5. DOI: https://doi.org/10.1016/j.ijnurstu.2014.12.009
Perl J, Hasan O, Bargman J, Jiang D, Na Y, Gill J, et al. Impact of dialysis modality on survival after kidney transplant failure. Clin J Am Soc Nephrol. 2011;6(3):582–90. doi: 10.2215/CJN.06640810.Epub 2011 Jan 13. DOI: https://doi.org/10.2215/CJN.06640810
Ayar Y, Ersoy A, Ocakoglu G, Yildiz A, Oruc A, Soyak H, et al. Risk Factors Affecting Graft and Patient Survivals After Transplantation From Deceased Donors in a Developing Country: A Single-Center Experience. Transplant Proc. 2017;49(2):270–7. doi: 10.1016/j.transproceed.2016.12.009 DOI: https://doi.org/10.1016/j.transproceed.2016.12.009
Boaz A, Morgan M. Working to establish “normality” post-transplant: A qualitative study of kidney transplant patients. Chronic Illn. 2014;10(4):247–58. doi: 10.1177/1742395313504789. Epub 2013 Sep 26 DOI: https://doi.org/10.1177/1742395313504789
Rees M, Dunn T, Kuhr C, Marsh C, Rogers J, Rees S, et al. Kidney Exchange to Overcome Financial Barriers to Kidney Transplantation. Am J Transplant. 2017;17(3):782–90. doi: 10.1111/ajt.14106 DOI: https://doi.org/10.1111/ajt.14106
Purnell T, Auguste P, Crews D, Lamprea-Montealegre J, Olufade T, Greer R, et al. Comparison of Life Participation Activities Among Adults Treated by Hemodialysis, Peritoneal Dialysis, and Kidney Transplantation: A Systematic Review. Am J Kidney Dis. 2013;62(5):953–73. doi: 10.1053/j.ajkd.2013.03.022. Epub 2013 May 29. DOI: https://doi.org/10.1053/j.ajkd.2013.03.022
Gill P, Lowes L. Renal transplant failure and disenfranchised grief: participants’ experiences in the first year post-graft failure--a qualitative longitudinal study. Int J Nurs Stud. 2014;51(9):1271–80. doi: 10.1016/j.ijnurstu.2014.01.012. Epub 2014 Feb 1 DOI: https://doi.org/10.1016/j.ijnurstu.2014.01.012
Schutz A, Luckmann T. Las estructuras del mundo de la vida. 1a ed. Amorrortu, editor. Buenos Aires; 1973. 320 p
Van Manen M. Investigacion educativa y experiencia vivida: ciencia humana para una pedagogía de la acción y la sensibilidad. Barcelona: Editorial Idea Books; 2003.
Van Manen M. Phenomenology of practice: meaning-giving methods in phenomenological research and writing. California: Editorial Left Coast Press; 2014.
Patton M. Qualitative evaluation methods and Research Methods. London: Editorial Sage; 2002.
Smith J. Qualitative psychology: a practical guide to research methods. London: Editorial Sage; 2008.
Finlay L. Negotiating the swamp: the opportunity and challenge of reflexivity in research practice. Qual Res. 2002;2(2):209–30. https://doi.org/10.1177/146879410200200205 DOI: https://doi.org/10.1177/146879410200200205
Lincoln Y, Guba E. Naturalistic inquiry. California: Editorial Sage; 1985. DOI: https://doi.org/10.1016/0147-1767(85)90062-8
Davis L, Grogan T, Cox J, Weng F. Inter- and Intrapersonal Barriers to Living Donor Kidney Transplant among Black Recipients and Donors. J Racial Ethn Heal Disparities. 2017;4(4):671–9. doi:10.1007/s40615-016-0270-8. Epub 2016 Aug 12. DOI: https://doi.org/10.1007/s40615-016-0270-8
Sieverdes JC, Raynor PA, Armstrong T, Jenkins CH, Sox LR, Treiber FA. Attitudes and perceptions of patients on the kidney transplant waiting list toward mobile health-delivered physical activity programs. Prog Transplant. 2015;25(1):26–34. doi: 10.7182/pit2015884 DOI: https://doi.org/10.7182/pit2015884
Gurkan A, Pakyuz SÇ, Demir T. Stress Coping Strategies in Hemodialysis and Kidney Transplant Patients. 2015;47(5)1392-7. doi: 10.1016/j.transproceed.2015.05.022 DOI: https://doi.org/10.1016/j.transproceed.2015.05.022
Sheikhalipour Z, Zamanzadeh V, Borimnejad L, Valizadeh L, Shahbazi M, Zomorrodi A, et al. Recipients’ experiences after organ transplantation. Int J Organ Transplant Med. 2018;9(2):88–96.
Low J, Crawford K, Manias E, Williams A. Stressors and coping resources of Australian kidney transplant recipients related to medication taking: a qualitative study. J Clin Nurs. 2017;26(11–12):1495–507. doi: 10.1111/jocn.13435. Epub 2017 Mar 20. DOI: https://doi.org/10.1111/jocn.13435
Hanson C, Chadban S, Chapman J, Craig J, Wong G, Ralph A, et al. The Expectations and Attitudes of Patients With Chronic Kidney Disease Toward Living Kidney Donor Transplantation: A Thematic Synthesis of Qualitative Studies. Transplantation. 2015;99(3):540–54. doi: 10.1097/TP.0000000000000433. DOI: https://doi.org/10.1097/TP.0000000000000433
Da Silva Cruz M, Daspett C, De Aguiar Roza B, Da Silva Ohara C, De Moraes Horta A. Family experience in the kidney transplant process from a living donor. Acta Paul Enferm. 2015;28(3):275–80. DOI: https://doi.org/10.1590/1982-0194201500046
Heidegger M. El ser y el tiempo. México: Editorial Fondo de Cultura Económica; 1974.
Burns T, Fernandez R, Stephens M. The experiences of adults who are on dialysis and waiting for arenal transplant from a deceased donor: a systematic review. JBI database Syst Rev Implement reports. 2015;13(2):169–211. doi: 10.11124/jbisrir-2015-1973. DOI: https://doi.org/10.11124/jbisrir-2015-1973
Schipper K, Abma TA, Koops C, Bakker I, Sanderman R, Schroevers MJ. Sweet and sour after renal transplantation: A qualitative study about the positive and negative consequences of renal transplantation. Br J Health Psychol. 2014;19(3):580–91. doi: https://doi.org/10.1111/bjhp.12057 DOI: https://doi.org/10.1111/bjhp.12057
Lonargáin D, Brannigan D, Murray C. The experience of receiving a kidney transplant from a deceased donor: Implications for renal services. Psychol Heal. 2017;32(2):204–20. doi: 10.1080/08870446.2016.1254214 DOI: https://doi.org/10.1080/08870446.2016.1254214
Muduma G, Shupo FC, Dam S, Hawken NA, Aballéa S, Odeyemi I, et al. Patient survey to identify reasons for non-adherence and elicitation of quality of life concepts associated with immunosuppressant therapy in kidney transplant recipients. Patient Prefer Adherence. 2016;10:27–36. doi: 10.2147/PPA.S96086 DOI: https://doi.org/10.2147/PPA.S96086
Bailey PK, Ben-Shlomo Y, Tomson CR V, Owen-Smith A. Socioeconomic deprivation and barriers to live-donor kidney transplantation: A qualitative study of deceased-donor kidney transplant recipients. BMJ Open. 2016;6(3): e010605. doi: 10.1136/bmjopen-2015-010605 DOI: https://doi.org/10.1136/bmjopen-2015-010605
Chatrung C, Sorajjakool S, Amnatsatsue K. Wellness and Religious Coping Among Thai Individuals Living with Chronic Kidney Disease in Southern California. J Relig Health. 2015;54(6):2198–211. doi: 10.1007/s10943-014-9958-4. DOI: https://doi.org/10.1007/s10943-014-9958-4
Rao PS, Nunes JW. Renal transplant failure has a devastating impact requiring greater recognition and support. Evid Based Nurs. 2015;18(3):78. doi: 10.1136/eb-2014-102008 DOI: https://doi.org/10.1136/eb-2014-102008
Schmid-Mohler G, Schäfer-Keller P, Frei A, Fehr T, Spirig R. A Mixed-Method Study to Explore Patients’ Perspective of Self-Management Tasks in the Early Phase after Kidney Transplant. Prog Transplant. 2014;24(1):8–18. doi: 10.7182/pit2014728 DOI: https://doi.org/10.7182/pit2014728
