Features family living in chronic disease Características familiares en situación de enfermedad crónica

Abstract

To describe the relatives at chronic caregivers of children younger than 15 years diagnosed with Cerebral Palsy who attended the rehabilitation center Cardio-Neuro-Muscular City of Cucuta in 2011. The study is quantitative, retrospective, population consisted of 70 family caregivers, two instruments were used “ISF.GEN-21” of Dr. Pilar Amaya King and “Characterization of Caregivers” group care National University of Colombia. The first instrument refers to the systemic organization and satisfaction of families and the second instrument identifies sociodemographic characteristics and context of care. Among the family characteristics were found that 84.3% of households have an organized system. The 72.9% of families say they are satisfied with the features they have and Total 87.1% of families are healthy. The results reported show organized families, satisfied and healthy reflecting the need for nurses play an important role establishing action plans to follow that allow train, reorganize the care given, is then also the key structure enabling the family to adapt to new demands in this case of a chronic disease.