Preparation of the parents for the discharge of the premature infant: concept analysis
Preparação dos pais para a alta hospitalar da criança prematura: Análise de conceito
Article Sidebar
PDF (Português (Brasil))
FLIP
HTML (Português (Brasil))
La Revista ofrece Acceso Abierto bajo una licencia Creative Commons Attibution License
Esta obra está bajo una Licencia Creative Commons Atribución - No comercial - No derivadas 4.0 Internacional.
Main Article Content
Introduction: The care that premature infant receive at home is crucial for their health and well-being; consequently, preparation for discharge from the neonatal unit is a critical process. In this review the concept preparing the parents of premature infant for discharge, is analyzed to facilitate their description in nursing practice and nursing research. Methodology: Integrative literature review. 21 articles published in SCIELO, LILACS and PUBMED, between 2009 and 2019, in English, Spanish and Portuguese, were analyzed. The descriptors were: Nursing, Premature infant, Discharge, Parents. Concept analyzed under Walker and Avant method; attributes, antecedents and consequences of the concept were identified. Results: The attributes were: knowledge and skills for the care, emotional preparation of parents and social support networks. As an Antecedents were identified the birth of the premature infant and parental involvement in the discharge process. Finally, identified consequences included the reduction in the number of hospital readmissions, an increase in the satisfaction of the parents and the enjoyment of the parental role. Conclusion: The neonatal unit should be a space where parents develop emotional, physical and cognitive skills for the care of their children through the process of preparation for discharge. This concept should also involve social support networks for home care.
Downloads
Article Details
Wang H, Bhutta Z, Coates M, Coggeshall M, Dandona L, Diallo K, et al. Global, regional, national, and selected subnational levels of stillbirths, neonatal, infant, and under-5 mortality, 1980–2015: a systematic analysis for the Global Burden of Disease Study 2015. Lancet. 2016; 388(10053):1725-1774. DOI: https://doi.org/10.1016/S0140-6736(16)31575-6
Stoll B, Hansen N, Bell E, Walsh M, Carlo W, Shankaran S, et al. Trends in Care Practices, Morbidity, and Mortality of Extremely Preterm Neonates, 1993-2012. JAMA. 2015;314(10):1039-51. DOI: https://doi.org/10.1001/jama.2015.10244
UNICEF, World Health Organization, World Bank Group, United Nations Grupo Interinstitucional de las Naciones Unidas sobre la Estimación de la Mortalidad en la Niñez. Levels & Trends in Child Mortality Report 2017. Estimates development by UN inter-agency Group for Child Mortality Estimation. Washinton. [Internet]. 2017 [consultado feb 17 de 2019] Disponible en: https://www.unicef.org/publications/files/Child_Mortality_Report_2017.pdf
Boykova M. Transition from Hospital to Home in Parents of Preterm Infants: A Literature Review. J Perinat Neonatal Nurs. 2016; 34(4):327–348. DOI: https://doi.org/10.1097/JPN.0000000000000211
Lakshmanan A, Agni M, Lieu T, Fleegler E, Kipke M, Friedlich P, et al. The impact of preterm birth <37 weeks on parents and families: a cross-sectional study in the 2 years after discharge from the neonatal intensive care unit. Health and Quality of Life Outcomes. [Internet]. 2017 [consultado abril 17 de 2018] 15:38. Disponible en: https://doi.org/10.1186/s12955-017-0602-3 DOI: https://doi.org/10.1186/s12955-017-0602-3
Morse JM, Solberg SM, Neander WL, Bottorff JL, Johnson JL. Concepts of caring and caring as a concept. ANS Adv Nurs Sci. 1990; 13(1):1-14. DOI: https://doi.org/10.1097/00012272-199009000-00002
Leininger M. Culture care theory: a major contribution to advance transcultural nursing knowledge and practices. J Transcult Nurs. 2002; 13(3):189-92; discussion 200-1. DOI: https://doi.org/10.1177/10459602013003005
Walker L, Avant K. Strategies for theory construction in nursing. 5th ed. Boston: Prentice Hall Secuencial; 2011.
Diccionario de la Real Academia de la Lengua Española. [Internet]. Madrid, España: Real Academia Española. [consultado mayo 17 de 2018]. Disponible en: http://dle.rae.es/?w=preparaci%C3%B3n
Eymin A, Lopetegui M, Manjarrez E. Proceso de alta hospitalaria, revisión de la literatura. Rev. méd. Chile [Internet]. 2014 [consultado agosto 21 de 2018]; 142(2): 229-237. Disponible en: https://scielo.conicyt.cl/scielo.php?script=sci_arttext&pid=S0034-98872014000200012 DOI: https://doi.org/10.4067/S0034-98872014000200012
Benavente I, Sánchez M, Leante J, Pérez A, Rite S, Ruiz C, et al. Criterios de alta hospitalaria para el recién nacido de muy bajo peso al nacimiento. An Pediatr. 2016; 87(1):54. DOI: https://doi.org/10.1016/j.anpedi.2016.11.007
Quinn J, Sparks M, Gephart S. Discharge Criteria for the Late Preterm Infant: A Review of the Literature. Adv Neonatal Care. 2017;17(5):362-371. DOI: https://doi.org/10.1097/ANC.0000000000000406
Smith V, Hwang S, Dukhovny D, Young, S Pursley D. State of the art: Neonatal intensive care unit discharge preparation, family. Readiness and infant outcomes: connecting the dots. J Perinatol. 2013; 33(6): 415–421. DOI: https://doi.org/10.1038/jp.2013.23
Schmidt K, Terassi M, Marcon S, Higarashi I. Práticas da equipe de enfermagem no processo de alta do bebê pré-termo. Rev. bras. enferm. [Internet]. 2013 [consultado febrero 04 de 2019]; 66 (6):833-839. Disponible en: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672013000600004&lng=en DOI: https://doi.org/10.1590/S0034-71672013000600004
Hunter M, Blake S, Simmons C, Thompson J, Derouin A. Implementing a Parent Education Program in the Special Care Nursery. J Pediatr Health Care. 2019; 33(2):131-137. DOI: https://doi.org/10.1016/j.pedhc.2018.06.007
Fenwick A. An interdisciplinary tool for assessing patients’ readiness for discharge in the rehabilitation setting. J Adv Nurs. 1979; 4(1): 9–21. DOI: https://doi.org/10.1111/j.1365-2648.1979.tb02984.x
Steele N, Sterling Y. Application of the case study design: Nursing interventions for discharge readiness. Clin Nurse Spec. 1992 6(2): 79–84 DOI: https://doi.org/10.1097/00002800-199200620-00008
Estados Unidos de América. Joint Commission International. Tracer metodology Effective Discharge Planning. The Source. [Internet]. 2013 [consultado feb 04 de 2019]. Disponible en: https://www.jointcommissioninternational.org/tracer-methodology-101-effective-discharge-planning/
Carpenito L. Diagnósticos de Enfermería. 3a ed. Madrid, España: Wolters Kluwer Health; 2017.
López T, Leonel A, Córdoba M, Campos E. El plan de alta de enfermería y su impacto en la disminución de reingresos hospitalarios. Enf Neurol. [Internet]. 2014 [consultado febrero 04 de 2019]; 13(1): 12-18. Disponible en: https://www.medigraphic.com/pdfs/enfneu/ene-2014/ene141c.pdf DOI: https://doi.org/10.37976/enfermeria.v13i1.177
Weiss M, Piacentine L, Lokken L, Ancona J, Archer J, Gresser S, et al. Perceived readiness for hospital discharge in adult medical-surgical patients. Clin Nurse Spec. 2007; 21(1): 31–42 DOI: https://doi.org/10.1097/00002800-200701000-00008
Lopez G, Hoehn K, Feutchinger J. Transition of Premature Infants from Hospital to Home Life. Neonatal Netw. 2012; 31(4): 207–214. DOI: https://doi.org/10.1891/0730-0832.31.4.207
Chiodi L, Aredes N, Scochi C, Fonseca L. Educação em saúde e a família do bebê prematuro: uma revisão integrativa. Acta paul. Enferm. [Internet]. 2012 [consultado febrero 04 de 2019]; 25(6): 969-974. Disponible en: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0103-21002012000600022&lng=en. DOI: https://doi.org/10.1590/S0103-21002012000600022
American Academy of Pediatrics, Committee on Fetus and Newborn. Hospital discharge of the high-risk neonate. Pediatrics 2008; 122(5): 1119–1126. DOI: https://doi.org/10.1542/peds.2008-2174
Purdy I, Craig J, Zeanah P. NICU discharge planning and beyond: recommendations for parent psychosocial support. J Perinatol. 2015; 35 (1): 24-8. DOI: https://doi.org/10.1038/jp.2015.146
Benzies KM, Shah V, Aziz K, Isaranuwatchai W, Palacio-Derflingher L, Scotland J, et al. Family Integrated Care (FICare) in Level II Neonatal Intensive Care Units: study protocol for a cluster randomized controlled trial. Trials. 2017; 18(1):467. DOI: https://doi.org/10.1186/s13063-017-2181-3
Ronan S, Liberatos P, Weingarten S, Wells P, Garry J, O'Brien K, et al. Development of Home Educational Materials for Families of Preterm Infants. Neonatal Netw. 2015; 34(2):102-12. DOI: https://doi.org/10.1891/0730-0832.34.2.102
Shwu-Jiuan S, Hsiu-Lin C, Fen-Chen L, Chuen-Ching L, Y-in-Hui L, Hsing-I T, et al. The effectiveness of structured discharge education on maternal confidence, caring knowledge and growth of premature newborns. J Clin Nurs. 2010; 19(3): 307–3313. DOI: https://doi.org/10.1111/j.1365-2702.2010.03382.x
Peyrovi H, Mosayebi Z, Mohammad-Doost F, Chehrzad M, Mehran A. The effect of empowerment program on “perceived readiness for discharge” of mothers of premature infants. Matern Fetal Neonatal Med. 2016; (29)5: 752-757. DOI: https://doi.org/10.3109/14767058.2015.1017461
Aydon L, Hauck Y, Murdoch J, Siu D, Sharp M. Transition from hospital to home: Parents’ perception of their preparation and readiness for discharge with their preterm infant. J Clin Nurs. 2017: 27(1-2), 269–277. DOI: https://doi.org/10.1111/jocn.13883
Kim H, Wyatt T, Li X, Gaylord M. Use of Social Media by Fathers of Premature Infants. J Perinat Neonat Nurs.2016; 30 (4): 359–366. DOI: https://doi.org/10.1097/JPN.0000000000000214
Vohr B, McGowan E, Keszler L, Alksninis B, O'Donnell M, Hawes K, Tucker R. Impact of a Transition Home Program on Rehospitalization Rates of Preterm Infants. J Pediatr. 2017; 181(1):86-92. DOI: https://doi.org/10.1016/j.jpeds.2016.10.025
Griffin J, Pickler R. Hospital-to-home transition of mothers of preterm infants. MCN Am J Matern Child Nurs. 2011; 36(4): 252-7. DOI: https://doi.org/10.1097/NMC.0b013e31821770b8
McGowan E, Du N, Hawes K, Tucker R, O'Donnell M, Vohr B. Maternal Mental Health and Neonatal Intensive Care Unit Discharge Readiness in Mothers of Preterm Infants. J Pediatr. 2017; 184:68-74. DOI: https://doi.org/10.1016/j.jpeds.2017.01.052
Bos L, Shorey S, Kulantaipian T, Sng J, Tam W, Koh S. Effectiveness of the Neonatal Discharge Program for Very Low-Birth-Weight Infants on Parental Efficacy and Psychological Distress. J Perinat Neonatal Nurs. 2018; 32(4):11-21. DOI: https://doi.org/10.1097/JPN.0000000000000337
Toral-López I, Fernández-Alcántara M, González-Carrión P, Cruz-Quintana F, Rivas-Campos A, Pérez-Marfil N. Needs Perceived by Parents of Preterm Infants: Integrating Care Into the Early Discharge Process. J Pediatr Nurs. 2016;31(2): 99-108. DOI: https://doi.org/10.1016/j.pedn.2015.09.007
Palma E, Von Wussow F, Morales I, Cifuentes J, Ambiado S. Estrés en padres de recién nacidos hospitalizados en una unidad de paciente crítico neonatal. Rev. chil. pediatr. [Internet]. 2017 June [citado 3 de abril de 2019]; 88(3): 332-339. Disponible en: https://scielo.conicyt.cl/scielo.php?script=sci_arttext&pid=S0370-41062017000300004&lng=en. DOI: https://doi.org/10.4067/S0370-41062017000300004
Phillips-Pula L, Pickler R, McGrath J, Brown L, Dusing S. Caring for a preterm infant at home: a mother's perspective. J Perinat Neonatal Nurs. 2013;27(4):335-44. DOI: https://doi.org/10.1097/JPN.0b013e3182a983be
Villamizar-Carvajal B, Vargas-Porras C, Gómez-Ortega O. Metaanálisis: efecto de las intervenciones para disminuir el nivel de estrés en padres de prematuros. Aquichán [Internet]. 2016 [consultado 08 de septiembre de 2018]; 16 (3): 276-295. Disponible en: http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S1657-9972016000300002&lng=en. DOI: https://doi.org/10.5294/aqui.2016.16.3.2
Ingram J, Redshaw M, Manns S, Beasant L, Johnson D, Fleming P, et al. "Giving us hope": Parent and neonatal staff views and expectations of a planned family-centred discharge process (Train-to-Home). Health Expect. 2017 Aug; 20(4):751-759. DOI: https://doi.org/10.1111/hex.12514
Oiberman A. La palabra en las maternidades: una aproximación a la psicología perinatal. Psicodebate [Internet]. 2001 [citado 7 de febrero de 2020]; 10:87-1. Disponible en: https://dspace.palermo.edu/ojs/index.php/psicodebate/article/view/525 DOI: https://doi.org/10.18682/pd.v1i0.525
Olberman A, Galíndez, E. Psicología perinatal: Aplicaciones de un modelo de entrevista psicológica perinatal en el posparto inmediato. Rev. Hosp. Mater. Infant. Ramón Sarda [Internet]. 2005 [citado 7 de febrero de 2020]; 24(3):100-109. Disponible en: https://www.redalyc.org/articulo.oa?id=91224302
Adama E, Bayes S, Sundin D. Parents' experiences of caring for preterm infants after discharge with grandmothers as their main support. J Clin Nurs. 2018; 27(17-18):3377-3386. DOI: https://doi.org/10.1111/jocn.13868
Fernández-Alcántara M, Cruz-Quintana F, Toral-López I, González-Carrión P, Rivas-Campos A, Pérez-Marfil N. Efectos de un programa de alta precoz sobre las preocupaciones de los padres de niños prematuros. Escr. psicol. [Internet]. 2015 [citado 4 de abril de 2019]; 8(2): 43-51. Disponible en: http://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S1989-38092015000200007&lng=es. DOI: https://doi.org/10.24310/espsiescpsi.v8i2.13236
Vogel J, Chawanpaiboon S, Moller A, Watananirun K, Bonet M,Lumbiganon P. The global epidemiology of preterm birth. Best Pract Res Clin Obstet Gynaecol. 2018; 10(1):76. DOI: https://doi.org/10.1016/j.bpobgyn.2018.04.003
Mendoza LA, Claros D, Mendoza LI, Arias M, Peñaranda C. Epidemiología de la prematuridad, sus determinantes y prevención del parto prematuro. Rev. chil. obstet. ginecol. [Internet]. 2016 [citado 4 de abril de 2019]; 81(4):330-342. Disponible en: https://scielo.conicyt.cl/scielo.php?script=sci_arttext&pid=S0717-75262016000400012&lng=es. DOI: https://doi.org/10.4067/S0717-75262016000400012
López R, Díaz E, Moreno C, Vargas K, Villamizar k, López G, et al. Condiciones biológicas, sociales y familiares asociadas al afrontamiento familiar ante el nacimiento de pretérminos en la ciudad de Cartagena – Colombia. Duazary [Internet]. 2011 [citado 7 de febrero de 2020]; 8(2):150-158. Disponible en: https://www.redalyc.org/articulo.oa?id=512156315005
Smith VC, Dukhovny D, Zupancic JA, Gates HB, Pursley DM. Neonatal intensive care unit discharge preparedness: primary care implications. Clin Pediatr (Phila) 2012; 51(5): 454–461. DOI: https://doi.org/10.1177/0009922811433036
Osorio S, Ochoa S, Semenic S. Preparing for post-discharge care of premature infants: Experiences of parents. Invest. Educ. Enferm. [internet] 2017 [consultado mayo 30 de 2018]; 35(1): 100-106. Disponible en: https://aprendeenlinea.udea.edu.co/revistas/index.php/iee/article/view/327350/20784769 DOI: https://doi.org/10.17533/udea.iee.v35n1a12
Aykanat B, Cimete G. Rehospitalization of preterm infants according to the discharge risk level. J Spec Pediatr Nurs. 2017; 22(1): e12165. DOI: https://doi.org/10.1111/jspn.12165
Butt ML, McGrath JM, Samra HA, Gupta R. An integrative review of parent satisfaction with care provided in the neonatal intensive care unit. J Obstet Gynecol Neonatal Nurs. [Internet]. 2013 [consultado mayo 30 de 2018]; 42(1):105-20. Disponible en: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3646381 DOI: https://doi.org/10.1111/1552-6909.12002
Garfield L, Holditch-Davis D, Carter C, McFarlin B, Schwertz D, Seng J, et al. Risk factors for postpartum depressive symptoms in low-income women with very low-birth-weight infants. Adv Neonatal Care. 2015; 15(1): 3-8 DOI: https://doi.org/10.1097/ANC.0000000000000131
French K. Care of Extremely Small Premature Infants in the Neonatal Intensive Care Unit: A Parent's Perspective. Clin Perinatol. 2017; 44(2):275-282. DOI: https://doi.org/10.1016/j.clp.2017.01.008
Hamilton BE, Martin JA, Osterman MJ. Births: preliminary data for 2015. Natl Vital Stat Rep. [Internet]. 2016 [consultado abril 17 de 2018]; 65(3):1–15. Disponible en: https://www.cdc.gov/nchs/data/nvsr/nvsr65/nvsr65_3.pdf
Arreola G, Cerda L, García-Alonso P. Estado de la vacunación en prematuros menores de 1500 g nacidos entre 2004 y 2007 en una institución de tercer nivel de atención. Perinatol Reprod Hum 2017; 31(4):188-196. DOI: https://doi.org/10.1016/j.rprh.2018.03.005
Garaboa N, Sarmiento Y, Márquez Y, Portal M, Vara O. El recién nacido pretérmino con infección de inicio precoz. Rev Ciencias Médicas 2015; (6):1014-1027
Carreño-Moreno S, Chaparro-Díaz L, Criado L, Vega O, Cuenca I. Magnitud de efecto de un programa dirigido a cuidadores familiares de personas con enfermedad crónica. NOVA; 2018; 16(29):11-20. https://doi.org/10.22490/24629448.2684 DOI: https://doi.org/10.22490/24629448.2684
Boykova M, Kenner C. Transition from Hospital to Home for Parents of Preterm Infants. Perinat Neonat Nurs. 2012; 26(1): 81–87. DOI: https://doi.org/10.1097/JPN.0b013e318243e948
Boykova M. Transition from Hospital to Home in Parents of Preterm Infants: Revision, Modification, and Psychometric Testing of the Questionnaire. J Nurs Meas. 2018 Aug; 26(2):296-310. DOI: https://doi.org/10.1891/1061-3749.26.2.296
Carrillo M, Sánchez B, Arias M. Validación de un instrumento para la evaluación de la competencia de cuidado en el hogar del cuidador familiar de una persona con enfermedad crónica. Invest. educ. enferm [Internet]. 2015 [consultado 01 febrero de 2019]; 33(3):449-455. Disponible en: http://www.scielo.org.co/pdf/iee/v33n3/v33n3a08.pdf
Weiss M, Costa L, Yakusheva O, Bobay K. Validation of patient and nurse short forms of the Readiness for Hospital Discharge Scale and their relationship to return to the hospital. Health Serv Res. 2013; 49(1):304-17. DOI: https://doi.org/10.1111/1475-6773.12092
Mabire C, Coffey A, Weiss M. Readiness for Hospital Discharge Scale for older people: psychometric testing and short form development with a three country sample. J Adv Nurs. 2015; 71(11):2686-96. DOI: https://doi.org/10.1111/jan.12731
Weiss M, Ryan P, Lokken L. Validity and reliability of the Perceived Readiness for Discharge After Birth Scale. J Obstet Gynecol Neonatal Nurs. 2006; 35(1):34-45. DOI: https://doi.org/10.1111/j.1552-6909.2006.00020.x
Chen Y, Zhang J, Bai J. Effect of an educational intervention on parental readiness for premature infant discharge from the neonatal intensive care unit. J Adv Nurs. 2016; 72(1):135-46. DOI: https://doi.org/10.1111/jan.12817
Siqueira H, Vila C, Weiss M. Cross-cultural adaptation of the instrument Readiness for Hospital Discharge Scale - Adult Form. Rev. Bras. Enferm. [Internet]. 2018 [citado 5 de febrero de 2019]; 71(3): 983-991. Disponible en: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672018000300983&lng=en. DOI: https://doi.org/10.1590/0034-7167-2017-0241
Aykanat Girgin B, Cimete G. Validity and reliability of the Neonatal Discharge Assessment Tool. J Spec Pediatr Nurs. 2016; 21(2):74-83. DOI: https://doi.org/10.1111/jspn.12142
Robison M, Pirak, C, Morrell C. Multidisciplinary discharge assessment of the medically and socially high risk infant. J Perinat Neonatal Nurs. 2016; 13(4):67–86. DOI: https://doi.org/10.1097/00005237-200003000-00006
Cheng L, Zhang Y, Gu Y, Lu C, Liu Q, Yuan H. Families' readiness for discharge of their pre-term infant: a best practice implementation Project. JBI Database System Rev Implement Rep. 2016; 14(9):367-380 DOI: https://doi.org/10.11124/JBISRIR-2016-003087
