Percepciones e implicaciones en personas con ostomías de eliminación. Revisión narrativa
Perceptions and implications in people with elimination ostomies. Narrative review
Contenido principal del artículo
Introducción: Las personas que experimentan el tener una ostomía de eliminación como parte de un tratamiento clínico enfrentan cambios que impactan su calidad de vida, a nivel familiar, social, laboral y económico. Metodología: Revisión narrativa, que incluyó artículos de todos los diseños metodológicos en español, inglés y portugués, disponibles en las bases de datos Scopus, Ovid Nursing, Pubmed, Web of Science, Lilacs, Sage, Sciencedirect, Scielo, Google Scholar y repositorios universitarios, con términos de búsqueda MeSH “Ostomy and Rural Population and caregivers”, de los últimos 10 años. Estos artículos surtieron análisis teórico para la construcción de categorías temáticas afines. Resultados: Las categorías temáticas obtenidas son: 1) significado de tener una ostomía: destino, estigma, cambio; 2) afectaciones en la calidad de vida: cambios físicos y de roles; 3) estrategias de afrontamiento: intervenciones integrales; 4) impacto de las intervenciones educativas: en el preoperatorio y para el cuidado; 5) importancia del autocuidado: facilita la adaptación; y 6) rol de los cuidadores: asumen la carga de cuidado. Conclusiones: Las personas con ostomías, sus cuidadores y familias experimentan diferentes cambios en las dinámicas y roles de vida, por lo cual requieren soporte en salud con apoyo emocional, en habilidades cognitivas e instrumentales.
Descargas
Detalles del artículo
Villa G, Mannarini M, Della Giovanna G, Marzo E, Manara DF, Vellone E. A literature review about self-care on ostomy patients and their caregivers. Int J Urol Nurs. 2019;13(2):75–80. http://doi.wiley.com/10.1111/ijun.12182 DOI: https://doi.org/10.1111/ijun.12182
Nova- Rodríguez, J; Camargo, F; Garzón, L; Pereira-Flórez, M; Calderón-Venegas M. Perfil epidemiológico de la población con ostomías de eliminación de una institución de salud de colombia - Dialnet. Enfermería Dermatológica. 2018;12(33):24–31. https://dialnet.unirioja.es/servlet/articulo?codigo=6549129
Michalak J, Spitler C, Simman R, Sharp K, Pei M. Stomal and peristomal complications management: a retrospective study. J Wound Care. 2023;32(1):35-42. http://doi/10.12968/jowc.2023.32.1.35 DOI: https://doi.org/10.12968/jowc.2023.32.1.35
Quemba-Mesa MP, Díaz-Fernández JK, Vargas-Rodríguez LY, Bautista-Plazas L & Pulido-Barragán SP. Experiencias y Percepciones en Parejas sobre el Cuidado de la Ostomía. Metasíntesis de Estudios Cualitativos. Investigación y Educación en Enfermería. 2020; 40 (2): e12. https://doi.org/10.17533/udea.iee.v40n2e12 DOI: https://doi.org/10.17533/udea.iee.v40n2e12
Son H, Kang Y. Coping Processes of Patients with Ostomies in South Korea: A Focus Group Study. Healthcare (Basel). 2020;9(1):21. Published 2020 Dec 27. https://doi.org/10.3390/healthcare9010021 DOI: https://doi.org/10.3390/healthcare9010021
Ayik C, Özden D, Cenan D. Ostomy Complications, Risk Factors, and Applied Nursing Care: A Retrospective, Descriptive Study. Wound Manag Prev. 2020;66(9):20-30.11. https://pubmed.ncbi.nlm.nih.gov/32903201/ DOI: https://doi.org/10.25270/wmp.2020.9.2030
Villa G, Vellone E, Sciara S, Stievano A, Proietti MG, Manara DF, et al. Two new tools for self‐care in ostomy patients and their informal caregivers: Psychosocial, clinical, and operative aspects. Int J Urol Nurs. 2019;13(1):23–30. https://onlinelibrary.wiley.com/doi/abs/10.1111/ijun.12177 DOI: https://doi.org/10.1111/ijun.12177
Liu H, Zhu X, Yu J, He P, Shen B, Tang X, et al. The Quality of Life of Patients with Colorectal Cancer and a Stoma in China: A Quantitative Cross-sectional Study. Adv Skin Wound Care. 2021;34(6):302-307. https://doi.org/10.1097/01.ASW.0000744348.32773.b9 DOI: https://doi.org/10.1097/01.ASW.0000744348.32773.b9
Velasco-Valencia Rico CL, López González LA, Gómez Suarez LM, Orrego Murillo D, Restrepo Peláez LV. Calidad de vida en personas portadoras de una ostomía digestiva. Rev. cienc. cuidad. 2019; 16(3):114-124 Disponible en: https://doi.org/10.22463/17949831.1721 DOI: https://doi.org/10.22463/17949831.1721
Sivero L, Bottone M, Siciliano S, Volpe S, Maione R, Chini A, et al. Post-operative oncological and psychological evaluation of patients with colostomy for colorectal cancer. Ann Ital Chir. 2022;93:435-438. https://pubmed.ncbi.nlm.nih.gov/35674003/
Palomero-Rubio R, Pedraz-Marcos A, Palmar-Santos AM. Aproximación a la vivencia de las personas en el proceso de una colostomía. Enferm Clin. 2018;28(2):81–8. https://doi.org/10.1016/j.enfcli.2017.12.004 DOI: https://doi.org/10.1016/j.enfcli.2017.12.004
Eid MA, Goldwag JL, Gray PP, Shaw RD, Ivatury SJ. Physicians perceive that ostomates have decreased quality of life but not overall health: An international survey of physicians. Colorectal Dis. 2022;24(12):1602-1612. https://doi.org/10.1111/codi.16289 DOI: https://doi.org/10.1111/codi.16289
Luo X, Li J, Chen M, Gong J, Xu Y, Li Q. A literature review of post-treatment survivorship interventions for colorectal cancer survivors and/or their caregivers. Psychooncology. 2021;30(6):807-817. https://doi.org/10.1002/pon.5657 DOI: https://doi.org/10.1002/pon.5657
Vural F, Harputlu D, Karayurt O, Suler G, Edeer AD, Ucer C, et al. The Impact of an Ostomy on the Sexual Lives of Persons With Stomas. J Wound, Ostomy Cont Nurs. 2016;43(4):381–4. https://doi.org/10.1097/WON.0000000000000236 DOI: https://doi.org/10.1097/WON.0000000000000236
Barbosa-Marques AD, Gomes-Silva JS, Cardoso-Nascimento L, Sampaio-Nery I, Barros-Araújo Luz MH. A vivência da sexualidade da mulher estomizada. Enfermagem em Foco. 2014;5(3/4): 83-86. https://doi.org/10.21675/2357-707X.2014.v5.n3/4.565 DOI: https://doi.org/10.21675/2357-707X.2014.v5.n3/4.565
Kimura CA, Guilhem DB, Kamada I, Silva De Abreu B, Fortes RC. Coloproctology Oncology ostomized patients’ perception regarding sexual relationship as an important dimension in quality of life. 2017;2(0):199–204. http://dx.doi.org/10.1016/j.jcol.2017.03.009 DOI: https://doi.org/10.1016/j.jcol.2017.03.009
Liao C, Qin Y. Factors associated with stoma quality of life among stoma patients. Int J Nurs Sci. 2014 Jun;1(2):196–201. http://dx.doi.org/10.1016/j.ijnss.2014.05.007 DOI: https://doi.org/10.1016/j.ijnss.2014.05.007
Ran L, Jiang X, Qian E, Kong H, Wang X, Liu Q. Quality of life, self-care knowledge access, and self-care needs in patients with colon stomas one month post-surgery in a Chinese Tumor Hospital. Int J Nurs Sci. 2016 Sep;3(3):252–8. http://dx.doi.org/10.1016/j.ijnss.2016.07.004 DOI: https://doi.org/10.1016/j.ijnss.2016.07.004
Mauricio VC, Souza NV, Oliveira D de, Lisboa MTL. Biopsychosocial determinants of the labor inclusion process of the person with a stoma. Rev Bras Enferm. 2014;67(3):415–21. https://doi.org/10.5935/0034-7167.20140055 DOI: https://doi.org/10.5935/0034-7167.20140055
Nichols TR, Inglese GW. The Burden of Peristomal Skin Complications on an Ostomy Population as Assessed by Health Utility and the Physical Component Summary of the SF-36v2®. Value Heal. 2018; 21(1):89–94. https://doi.org/10.1016/j.jval.2017.07.004 DOI: https://doi.org/10.1016/j.jval.2017.07.004
Knowles SR, Tribbick D, Connell WR, Castle D, Salzberg M, Kamm MA. Exploration of Health Status, Illness Perceptions, Coping Strategies, Psychological Morbidity, and Quality of Life in Individuals With Fecal Ostomies. J Wound, Ostomy Cont Nurs. 2017;44(1):69–73. https://doi.org/10.1097/WON.0000000000000295. DOI: https://doi.org/10.1097/WON.0000000000000295
Capilla-Díaz C, Bonill-de las Nieves C, Hernández-Zambrano SM, Montoya-Juárez R, Morales-Asencio JM, Pérez-Marfil MN, et al. Living With an Intestinal Stoma: A Qualitative Systematic Review. Qual Health Res. 2019 Jul 25;29(9):1255–65. http://journals.sagepub.com/doi/10.1177/1049732318820933 DOI: https://doi.org/10.1177/1049732318820933
Henao Trujillo OM, Alemán G, Daza D, Sónchez P, Garcia J, Aristizóbal Ganzález KD. Adaptación del paciente ostomizado: Proceso derivada de la atención del profesional de Enfermería. Revista Cultura del Cuidado Enfermería. 2019; 16(1): 75-88 https://revistas.unilibre.edu.co/index.php/cultura/article/view/5847
Karabulut HK, Dinç L, Karadag A. Effects of planned group interactions on the social adaptation of individuals with an intestinal stoma: a quantitative study. J Clin Nurs. 2014; 23(19–20):2800–13. http://doi.wiley.com/10.1111/jocn.12541 DOI: https://doi.org/10.1111/jocn.12541
Park S, Jang IS, Kim YS. Risks for depression among ostomates in South Korea. Japan J Nurs Sci. 2018;15(3):203–9. https://onlinelibrary.wiley.com/doi/10.1111/jjns.12197 DOI: https://doi.org/10.1111/jjns.12197
Temprado Albalat MD, García Martínez P, Ballester Arnal R, Collado-Boira EJ. The relationship between resilience and quality of life in patients with a drainage enterostomy. J Health Psychol. 2018;135910531876155. http://journals.sagepub.com/doi/10.1177/1359105318761555 DOI: https://doi.org/10.1177/1359105318761555
Moreira CN de O, Marques CB, Silva MAP da, Pinheiro FAM SG. Association of sociodemographic and clinical factors with spirituality and hope for cure of ostomized people. 2016;36(3):2016. http://doi/10.1177/1359105318761555 DOI: https://doi.org/10.1016/j.jcol.2016.04.009
Miranda LSG, Carvalho AA de S, Paz EPA. Quality of life of an ostomized person: relationship with the care provided in stomatherapy nursing consultation. Esc. Anna Nery 22 (4). 2018. https://doi.org/10.1590/2177-9465-EAN-2018-0075 DOI: https://doi.org/10.1590/2177-9465-ean-2018-0075
de Lima JA, Muniz K de C, Salomé GM, Ferreira LM. Associação dos fatores sociodemográficos e clínicos com a autoimagem, autoestima e locus de controle em saúde nos indivíduos com estoma intestinal. J. Coloproctol. 2018; 38 (1): 056-064. https://doi.org/10.1016/j.jcol.2017.11.003 DOI: https://doi.org/10.1016/j.jcol.2017.11.003
Li F, Deng B, Xu L, Song M, Li X. Practice and Training Needs of Staff Nurses Caring for Patients with Intestinal Ostomies in Primary and Secondary Hospitals in China: A Cross-Sectional Survey. J Wound, Ostomy Cont Nurs. 2019;46(5):408–12. https://doi.org/10.1097/won.0000000000000557 DOI: https://doi.org/10.1097/WON.0000000000000557
Harris MS, Kelly K, Parise C. Does Preoperative Ostomy Education Decrease Anxiety in the New Ostomy Patient? A Quantitative Comparison Cohort Study. J Wound Ostomy Continence Nurs. 2020 Mar/Apr;47(2):137-139. https://doi.org/10.1097/won.0000000000000623 DOI: https://doi.org/10.1097/WON.0000000000000623
Traa MJ, De Vries J, Roukema JA, Rutten HJT, Den Oudsten BL. The sexual health care needs after colorectal cancer: the view of patients, partners, and health care professionals. Support Care Cancer. 2014;22(3):763–72. Available from: http://link.springer.com/10.1007/s00520-013-2032-z DOI: https://doi.org/10.1007/s00520-013-2032-z
Werth SL, Schutte DL, Stommel M. Bridging the Gap. J Wound, Ostomy Cont Nurs. 2014;41(6):566–72. https://doi.org/10.1097/won.0000000000000081 DOI: https://doi.org/10.1097/WON.0000000000000081
Nagano M, Ogata Y, Ikeda M, Tsukada K, Tokunaga K, Iida S. Peristomal Moisture-Associated Skin Damage and Independence in Pouching System Changes in Persons with New Fecal Ostomies. J Wound, Ostomy Cont Nurs. 2019;46(2):137–42. https://doi.org/10.1097/won.0000000000000491 DOI: https://doi.org/10.1097/WON.0000000000000491
Zheng M-C, Zhang J-E, Qin H-Y, Fang Y-J, Wu X-J. Telephone follow-up for patients returning home with colostomies: Views and experiences of patients and enterostomal nurses. Eur J Oncol Nurs. 2013 ;17(2):184–9. https://doi.org/10.1016/j.ejon.2012.05.006 DOI: https://doi.org/10.1016/j.ejon.2012.05.006
Sun V, Ercolano E, McCorkle R, Grant M, Wendel CS, Tallman NJ, et al. Ostomy telehealth for cancer survivors: Design of the Ostomy Self-management Training (OSMT) randomized trial. Contemp Clin Trials. 2018;64(October 2017):167–72. https://doi.org/10.1016/j.cct.2017.10.008 DOI: https://doi.org/10.1016/j.cct.2017.10.008
Wasserman M, Baxter NN, Rosen B, Burnstein M, Halverson AL. Systematic Review of Internet Patient Information on Colorectal Cancer Surgery. Dis Colon Rectum. 2014;57(1):64–9. https://doi.org/10.1097/dcr.0000000000000011 DOI: https://doi.org/10.1097/DCR.0000000000000011
de Morais FF, Santos JDM, de Vera SO, Oliveira RGA, Andrade EMLR, Araújo SNM. Management of intestinal stomas: Knowledge of the caregiver. Mundo da Saude. 2018;42(4):823–44. https://doi.org/10.15343/0104-7809.20184204823844 DOI: https://doi.org/10.15343/0104-7809.20184204823844
Quintana Jiménez P, Aguilera Bazán A, Albízuri Prado MF, Álvarez Peña E, Miren Andrés A, de la Antonia Montoro M, Arias Álvarez ME. Awa. Tratado de ostomía, incontinencia y herida quirúrgica-Proyecto Calidad de vida de las personas ostomizadas. 2020. International Marketing & Communication (IM&C). https://www.todostuslibros.com/autor/de-la-quintana-jimenez-paloma-aguilera-bazan-alfredo-albizuri-prado-maria-fatima-alvarez-pena-estibaliz-miren-andres-ana-de-la-antonia-montoro-maria-arias-alvarez-maria-encina-awa.
Santos R de P, Fava SMCL, Dázio EMR. Self-care of elderly people with ostomy by colorectal cancer. J Coloproctology. 2019;39(3):265–73. https://doi.org/10.1016/j.jcol.2019.01.001 DOI: https://doi.org/10.1016/j.jcol.2019.01.001
McMullen CK, Kwan ML, Colwell JC, Munneke JR, Davis J V., Firemark A, et al. Recovering from Cystectomy: Patient Perspectives. Bl Cancer. 2019; 5(1):51–61. https://doi.org/10.3233/blc-180202 DOI: https://doi.org/10.3233/BLC-180202
Hornbrook MC, Cobb MD, Tallman NJ, Colwell J, McCorkle R, Ercolano E, et al. Costs of an ostomy self-management training program for cancer survivors. Psychooncology. 2018 Mar;27(3):879–85. Available from: http://doi.wiley.com/10.1002/pon.4584 DOI: https://doi.org/10.1002/pon.4584
Krouse RS, Grant M, McCorkle R, Wendel CS, Cobb MD, Tallman NJ, et al. A chronic care ostomy self-management program for cancer survivors. Psychooncology. 2016; 25(5):574–81. http://doi.wiley.com/10.1002/pon.4078 DOI: https://doi.org/10.1002/pon.4078
Ni ZH, Ding S, Wu JH, Wang F. Family caregivers’ experiences of caring for neonates undergoing enterostomy in China: A qualitative study. Nurs Open. 2023;10(2):817-827. https://doi.org/10.1002/nop2.1350 DOI: https://doi.org/10.1002/nop2.1350
Fan X, Li H, Lai L, Zhou X, Ye X, Xiao H. Impact of internet plus health education on urinary stoma caregivers in coping with care burden and stress in the era of COVID-19. Front Psychol. 2022;13:982634. https://doi.org/10.3389/fpsyg.2022.982634 DOI: https://doi.org/10.3389/fpsyg.2022.982634
Heerschap C, Woo KY. Formal Caregiver Experiences of Caring for Individuals at Risk for or with a Pressure Injury: A Metasynthesis. Adv Skin Wound Care. 2022;35(12):680-687. https://doi.org/10.1097/01.asw.0000855044.92545.af DOI: https://doi.org/10.1097/01.ASW.0000855044.92545.af
Golpazir-Sorkheh A, Ghaderi T, Mahmoudi S, Moradi K, Jalali A. Family-Centered Interventions and Quality of Life of Clients with Ostomy. Nurs Res Pract. 2022;2022:9426560. Published 2022 Aug 29. https://doi.org/10.1155/2022/9426560 DOI: https://doi.org/10.1155/2022/9426560
Rock M, Kieserman JM, Sun V, et al. Clinical and Demographic Differences Among Cancer Survivors With Ostomies With and Without Informal Caregivers. J Cancer Educ. 2022; https://doi.org/10.1007/s13187-022-02139-x DOI: https://doi.org/10.1007/s13187-022-02139-x
Mohammadi M, Esmaeili R, Fani M. Review of the correlation between religion coping strategy and quality of life in intestine Cancer in patients with Ostomy. J Adv Pharm Educ Res. 2019;9:111–6. https://japer.in/article/review-of-the-correlation-between-religion-coping-strategy-and-quality-of-life-in-intestine-cancer-in-patients-with-ostomy
Silva Ana Lúcia da, Faustino Andréa Mathes, Sousa João Batista, Vianna André Luiz OPG. Marital interactions in partners of ostomized patients. J Coloproctol (Rio J). 2014;34(4):210–5. https://doi.org/10.1016/j.jcol.2014.08.005 DOI: https://doi.org/10.1016/j.jcol.2014.08.005
Altschuler A, Liljestrand P, Grant M, Hornbrook MC, Krouse RS, McMullen CK. Caregiving and mutuality among long-term colorectal cancer survivors with ostomies: qualitative study. Support Care Cancer. 2018 Feb 1;26(2):529–37. https://doi.org/10.1007/s00520-017-3862-x DOI: https://doi.org/10.1007/s00520-017-3862-x
Sasaki VDM. Autocuidado com a estomia intestinal e equipamentos coletores: perspectiva das pessoas estomizadas intestinais, familiares e equipe multidisciplinar do Programa de Ostomizados. Esc Enferm Ribeirão Preto/USP. 2018;53(9):212.
https://doi.org/10.11606/T.22.2018.tde-31072018-134317 DOI: https://doi.org/10.11606/T.22.2018.tde-31072018-134317
Türkmenoglu G, Karadag A. Problems Experienced by Spouses of Turkish Patients With a Stoma: A Descriptive, Cross-Sectional Study. Wound Manag Prev. 2019;65(11):33-41. https://doi.org/10.1007/s00384-013-1749-y DOI: https://doi.org/10.25270/wmp.2019.11.3341